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Strength to Care

Lessons from Matthew & Isaac – Our CHARGE Syndrome Journey

Troupe troupe is getting smaller…

It has been a little over a year since my last post. I am going to be quite honest…I needed the break from blogging. The past year for the Troupe’s has been filled with both intense joy and deep sadness as we are adjusting to the changes that have come our way.

From your many questions and comments I know I need to update all of you who have supported and prayed for us over the years. I will try to give a brief update from the oldest to the youngest and then set the stage for a series of blogs I am working on beginning when I get back from my annual “me” time…also known as my annual fishing trip.

Hannah – She is now moved in and in training for the next 18 months of her life. She is on the CORE Staff this summer for four months at Grace Adventures. When the summer is done she will begin their PACE Ministry Apprenticeship Program. We are excited to see where God leads her during this time of formation and ministry.

Megan – She is now happily married and living in Dallas, TX with her husband John. Megan is working full-time, involved in theater (big surprise) while John is attending Dallas Theological Seminary. We continue to pray for them as they build their new life of ministry together

Sarah Anne – She has been busy following her sisters in the theater world. In the last six months she has been a part of 4 different productions! She is also preparing for the upcoming 4-H fair season in our county.

Matthew – He is still most happy when his schedule shows school on it and when he gets to spend time with one of his new home therapist who works with him on behaviors and communication. This is the first time Matthew has had a man be a part of his at home team and he really seems to like him. One of Matthew’s favorite things is water. Last summer we acquired a pontoon boat for us to spend family time together. There are very few things we find to do that we can all do together…boating is something we can all do and all enjoy. It is quite amazing how Matthew’s entire demeanor changes and how he completely relaxes when we are on the water.

Isaac – Can you believe he will be turning 7 this summer! Isaac started school this past fall and is currently in a special needs classroom at a general population school. He has several opportunities for inclusion throughout his day. Isaac’s health has been generally good with occasional ups and downs.

What about Theresa and Kevin? Our hearts have swelled with joy and also have been broken as we have sent both Hannah and Megan “out of the nest”. They have not only been our daughters but they have also been our friends and steadfast help within our unique family. We are learning to adjust to them not being there to help cover our backs when we needed “just 15 minutes” to get something done. They have help cover time for us to get away for some alone time. Sarah Anne is missing having her two big sisters around who took time to bounce on the trampoline as well as play dolls with her. We really underestimated the impact it had, although delayed on Matthew. Isaac seemed to roll with it but Matthew was acting up about a week after Megan had moved out. He was signing “family”. It was his way of communicating that he knew Megan wasn’t there and that he missed her. We have learned that he needs to use our phones face to face with her every once in a while. After that reaction we were sure to make a point to show Matthew Hannah’s packed car and say goodbye. So far he has been content with that and with so little time since Hannah has left he has not indicated missing Hannah yet.

“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.” Matthew 11:28-30 NIV

I am going to take some time to talk about my experience of moving from a full troupe to a smaller troupe of Troupe’s over the next few blogs. I am going to include input from Theresa and hopefully some from the girls perspective. It think it is hard enough to experience some emptying of the nest for families…when you add in the factor of having two special needs kids in the bunch there are other factors that make this transition even harder. We are also experiencing changes in nursing and caregivers as programs have been cut and available help hours have been cut. We have experienced the weariness and being heavily burdened. But, we do find rest when we need it most.

Thanks for being there for us. Thanks for praying for us. We know that we have an army out there. Please keep us in mind as we transition through the narrowing of the Troupe’s.

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