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Strength to Care

Lessons from Matthew & Isaac – Our CHARGE Syndrome Journey

Latest Posts

Teachable Moments

An evening a few years ago our family was winding down a long day of school, work and play. I was preparing and packing for being away for a few days on a Staff Retreat with the people who I have the honor of sharing in ministry with at the church that I am employed. I was looking forward to the opportunity to reflect, grow in relationships and listen to where God may be leading us for the next year. The pace of the evening changed dramatically when that familiar crackling sound of Velcro being separated was heard coming from Matt’s bedroom. Now, for most folks that is not a dreaded sound. In our household it holds a very distinct meaning, or action. The sound is of a releasing of diaper tags and a flung diaper. Until it is investigated we have no way of knowing if it is just a wet diaper or the dreaded “soiled” diaper. This one was a soiled one of epic proportion. We commonly refer to this incident as a Poo Sling. Not all poo slings are the same…some are compact and hard, some are really wet and pasty. This one was the latter and had no regard for the boundaries of the diaper. There is a protocol that is followed when this kind of event happens. In typical CSI fashion (Theresa’s favorite kind of television show, Crime Scene Investigators) an assessment of the scene is taken; ceiling (yes, I said ceiling), walls, flooring and then innocent victims such as books, toys, etc. Cleaning…
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“I don’t think I can do that”

Have you ever said to yourself “I don’t think I can do that?” or what about “that is just not my gift?” We have all set limitations and goals for ourselves over the years. Goals like losing weight, finding a more fulfilling career, getting in better shape, learning about a new hobby, etc. Just as damaging of not acheiving a set goal is putting limitations on what we can do. A great quote I read recently by the late Henry Ford is “Whether you think you can or think you can’t, either way, you are right.” It really comes down to what we believe we can do. It really is a matter of attitude when we are faced with situations in our lives. When talking about goals in our lives, the great artist Michelangelo who was most famous for his paintings and sculpture said this about setting goals: “The greatest danger for most of us is not that our aim is too high and we miss it. But, that it is too low and we reach it.” What Matthew has and continues to teach all of us is that there seems to be no limit to what he will try to accomplish. If we relied entirely on what “the experts” had told us he would amount to, we would have reached those goals years ago and presumably be wandering around aimlessly at the present. Matthew is only as dissabled as we tell him he is. Likewise, we are only as limited as to…
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What a difference a day makes

Have you ever had days like this? One of those days where is seems as if everyone wants a piece of you, your time, your abilities? Even though the procedure or tests have their benefits, it doesn’t make it any easier to endure them. In the face of trials and bad days it may seem that the day or the bad experience will never end. But, the sun sets and the sun rises the next day. Somehow, a little distance of time between the event, things look a little better. In reflecting this past week after experiencing Easter, the tale of these two pictures tell the Easter Journey well…What a difference a day Makes! I am sure, to the apostles and those who followed Jesus so closely, the day of and the day after Jesus was put to death were pretty bleak. But, on the third day he rose! There is new life and things do look better. Thankfully, in our case, things look great for eternity! The pictures of Matt in this post are from the day before Good Friday where he had another EKG and ECHO of his struggling heart. Matt has a leaking mitral valve. This is something that we have been watching since he was born. As time has gone on and he has grown, we have been given good news that the valve may be repairable instead of the conclusion early on that was that they were going to have to replace it with an artificial one. But,…
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An introduction to Matthew Troupe

This site is an attempt to encourage and inspire parents and those who work with the Special Needs community. We are a family of six who have been blessed with a child with special needs. The syndromes and labels do not matter as much as what we all share in common, that is, what unique challenges that we share. Hopefully this blog and the snapshots that you recieve from our experiences will make you laugh, make you cry and also challenge you to see everything that we are presented with in life as a chance to grow and mature.